As a new parent, learning that your child has phenylketonuria can be alarming and stressful. Yes, your child has a genetic condition, but the good news is that it is not that complicated to understand and relatively easy to manage. However, it is important to have a good foundation and to get the relevant information quickly and clearly.
I was lucky to have been well taken care of during my childhood and my mother received the necessary tools and information to manage my phenylketonuria perfectly, which allowed me to become the man I am today. I take a moment to thank her from the bottom of my heart, as well as all the health professionals who have helped her. 🙂
Information and communication will always be key elements in staying calm and facing the future with confidence and peace of mind. For that reason, I launched my blog in 2015. 🙂
I was extremely happy when Nutricia Metabolics sent me these 6 detailed and very visual guides which clarify certain specific elements of phenylketonuria, so that I can share them with you. Here is the list!
- Short guide for pregnancy
- Short guide for teachers and nurses in schools
- Short guide for the daycare or the babysitter
- Short guide to understand the formula
- Short guide to eating at the restaurant
- Short guide for grandparents
These tools are wonderful because in addition to being usable online, you can easily print them out and give them to the right people so they can understand the specifics of your child’s genetic condition! They all contain information, advice, tips and tricks that will reassure the various stakeholders. And then, you will be reassured too. 🙂
This article is presented in collaboration with Nutricia North America, but the ideas and recommendations are mine.
PCU blogue 