As it is very hot in summer, it is always nice to find a small frozen snack, just to cool off between swimming and outdoor activities. Ice cream is delicious, but unfortunately it is a dairy product and it is prohibited for people with phenylketonuria. I was lucky enough to come across this wonderful product … Lire la suite Product | The frozen discovery of the summer
We recently purchased a small machine that we are very proud of and happy to own. The OGarden Smart, the creation of a small Quebec company, has officially started in our kitchen! The process is very simple. After germinating sprouts for a few weeks in the compartment at the bottom of the machine, we were … Lire la suite Pushing vegetarianism to the next level
I was browsing on some Phenylketonuria Facebook groups, looking for inspiration, when I came across that question: what is the worst thing you've been told about phenylketonuria? I can tell you that all kinds of things came out, funny and less funny! But one answer in particular interested me. "Your phenylalanine levels must be high … Lire la suite Let’s talk about phenylketonuria and bad mood
This text was published in the magazine “News & Views | Issue 158” and is written by Suzanne Ford, RD (NSPKU) and Dr Ben Green, PhD., Medical Affairs Research Advisor (Nutricia). There are many helpline queries about diet for life – this article explains a little bit about what is now known about phenylalanine and … Lire la suite The Importance of Diet for Life
On this International Women's Day, I would like to give the microphone, or rather the pencil, to a member of our social media community who wrote an article about her pregnancy experience while managing the difficulties of Phenylketonuria. We are both hopeful that this will inspire and confidence to many women and/or couples living with … Lire la suite Pregnancy and PKU
We are now in 2017 and the Rare Disease Day is fast approaching! It will indeed take place on February 28th. Since my goal has always been to present phenylketonuria in a positive light and to as many people as possible, I decided to make some changes in my information sharing tactics. With this in … Lire la suite The Wind of Change Blows on the « PCU Quebec » Website!
I do not know anyone who does not like bacon. On the other hand, people living with phenylketonuria do not have the chance to enjoy it at lunch or even in these famous sandwiches BLT - bacon, lettuce, tomato, for the intimates. However, when I visited a few vegetarian and vegan restaurants in Montreal, I had the … Lire la suite BLT without B
This morning, I was tempted to give you a reflection after seeing a question on a Facebook group. I subscribe to a few Pages and groups that deal with phenylketonuria and on one of them, someone asked a simple question, but it raised passions. What is the thing you prefer with having PKU? Personally, I think … Lire la suite Phenylketonuria: Is it a Positive or a Negative Thing?
Aimez-vous la cuisine mexicaine? Personnellement, ce n'est pas ma préférée, mais une fois de temps en temps, ça fait du bien par où ça passe. ...En autant qu'on évacue les haricots et les tortillas! Il y a bien trop de protéines dans ces aliments pour les phénylcétonuriques.
Il a toujours été important pour moi de démontrer qu'avoir la phénylcétonurie n'est pas une faiblesse ou un problème, mais bien un atout unique, une force, un mode de vie. Nous sommes conscients de notre santé, faisons des choix alimentaires éclairés, nous consommons plein de légumes et de fruits, bref nous sommes super. 🙂 C'est … Lire la suite Le logo de Phénylcétonurie Québec est un bijou!